Stroke is no Joke...

Discussion in 'Fred's Barcalounge' started by stevo, Jul 19, 2021.

  1. MichaelRopp

    MichaelRopp Electromatic

    Jan 20, 2021
    Stevo--YIKES. Sorry to hear you had this scare, but very glad to hear she's doing OK. Best wishes for a full recovery, and thanks for that reminder about NOT waiting when the warning signs appear.
    stevo likes this.
  2. gretsch-to-go

    gretsch-to-go Gretschie

    Oct 2, 2019
    Palm Coast, FL
    I went thru this a couple of times with my Mom back in 2012 & 2013, Dad & even their dog in 2017 & 2018. The first stroke my Mom had, she went back to bed that night, but the 2nd one she had that night was easily within the window to get the miracle cure. I lived 13 hours away, there wasn't much I could do for Mom in those moment. My Mom was 79 turning 80. She also had a lot of underlying comorbidities, failing body organs, etc.. The long story, short, she was under their care after the stroke(s) of Feb 2012, for another 11 months and she continued to have strokes that they administered their antidote & miracle cure. And with each stroke (mini episode) she got worse until she was for lack of a better term for it, severely retarded. Dad & dog, same thing, underlying heart condition, Dad was 96.5, the dog 18 years & 3 months.

    See what happens is the oxygen to her brain was inadequate. That oxygen & blood is vital to every organ in your body. Without it, the organs fail if they aren't worn out already over a lifetime of use & abuse. Kidney, liver, bladder, any organ you can think of. The human body is at least the respiratory system & circulatory systems to oxygenate the blood that is the vital fluid for life. Invest in a $ 10 Oximeter off ebay and you will see that it measures spO2 & heartbeat/pulse rate. That's the tool they use to measure the O2 in your blood and the device is that reliable & inexpensive.

    My Dad went thru similar at the end of his life & I was his caregiver for those 2 years. Dad had a heart attack a decade or so before, had stents put in. Later they would do a carotid artery surgery for that. As he neared hi end of life, he started having mini heart attacks rather than a full blown massive coronary. And he had the "best" specialists in the Jacksonville, FL area as well. Modern medicine can do a lot of great things, but they have no cure for human mortality. This 2020 pandemic is a stark reality of that fact.

    I'm not here to wipe out hope or optimism, but my post & suggestion is that you have to be mentally prepared for the worst. I was in an ICU room for 5 days watching the healthcare show funded by Medicare, Dad eventually was discharged to hospice that lasted another 5 days. Every expert in North Florida was in the room and had no more solutions as smoke & mirrors for Dad that day. I suspect my Mom faced the same stark situation in 2012 & 2013 as she passed away.

    I hope your wife recovers obviously. As a caregiver, first timer, you never are prepared for it with family & someone a lot closer than a stranger. I have empathy for anyone that goes thru it. It's different when it's blood relative or spouse. I would make sure that I knew as much as the cardiologist for what your wife's true situation is so you can make decisions better. I hated it when a doctor would approach me with no information and expect me & rest of the family to make decisions. There's a point with any patient that they really are Hail Mary cures because of the reality of the situation. I realize it may sound cold. With pets there's Euthanasia for people there is hospice & morphine. In early 2018, I went thru Euthanasia in January for the dog, 21 days later Dad joined Mom & dog at the cemetery in February 2018.

    As a caregiver, I relocated & gave up my career, moved from Miami to Jax/Fernandina/Yulee, FL. The cemetery plot there I still visit to this day, I buried Mom's ashes, dog's ashes & Dad's ashes. And when I say I buried them, I was the one that shoveled the dirt into each of those holes as the pastor was doing his ceremonial rituals.

    This link will give you some insights of what anyone faces as the human race as a population ages.

    Each year, any of us is a year closer to the average mortality age, regardless of gender, race or anything else. The one thing I had drilled into my head, any of us doesn't get out of this life alive, I got it coming myself. It's like being on a perpetual cycle of the Titanic for 80 years. The ship is going down for someone in this world. When I revisit that link, too many of the topics/questions I endured. See one thing about caregiver as a 1st timer, until the death certificate is finalized & absolves anyone of accountability. There will be family members that you never thought were capable of accusations may step out of their insecurities enough to make accusations. If you've ever paid for home healthcare, trust me, that's $ 20/hour for 24 hour care in shifts in hospice $ 480/day. I did that for 2 years taking a night stock job at Wal-Mart with no benefits other than the roof that Dad had. Just to give you an idea of the career that I gave up, I'm a SQL server Database Analyst & Developer. The pay scale differentials between what Wal-Mart pays shelf stock associates is exponential. And I have family that was worried about my Dad's finances (estate), concerned that I slept in a spare bedroom, had a roof over my head. I did more than Home Healthcare ever did before their Hospice shift of it all. At a certain point I felt like the grim reaper, waiting for the catastrophic final event. That level of readiness takes it's toll, I was sleeping nap style for easily the last year that way. Sleep deprivation isn't pretty. I had 2 patients, dog & Dad. I lost both of them 21 days apart. It's a game in life I was supposed to lose, I'm a sore loser for it. Even more bitter about the transition back into a normal life. Employers low ball, they act like you never worked a day in your life or have a skill set. Life is complex and gets more complicated as we continue our journey on the planet Earth.

    I guess what I'm saying, unless you can afford a team of cardiologists to monitor 24 hours, you're going to need the same tools the doctors have. The Oximeter & Blood Pressure cuff are just 2 of them. Any medications, know that if you track & observe BP & Oximeter readings at home, you'll know more in any given moment than any Cardiology specialist. You'll become a nurse at the very least in this process,managing the patients vitals. You won't have the luxury of a blood lab, all you have are the in home devices that modern medicine allows any of us to purchase. See heart attacks & strokes happen with no predictable warnings. You'll see blood concentrations for O2 fluctuate. Ideal is 98-100% O2 presence. Permanent brain damage starts at 90% & less, dip consistently below 90% and you need an O2 machine. Sleep Apnea is another thing that compounds that O2 level, people stop breathing and need a C-Pap machine. All you can do is monitor the vitals, the ICU has even more expensive life support systems. With Mom & Dad, they had Oxygen machines like C-Pap & ventilators and if the electricity ever went out, they had those steel cylinders of O2 until power is restored. What I learned 1st hand, a facility may have staff, but they are spread thin too. shared resources. If nobody is paying attention when the event happens, nobody is there to save anyone, if it's even humanly possible to save anyone at the point. That's the danger of being home, but like the pandemic, how many lives expired in the ICU ?
    Last edited: Jul 23, 2021
  3. Fancy is her name

    Fancy is her name Electromatic

    Mar 15, 2018
    Sending all of my very best wishes for a speedy recovery! She sounds like she’s doing well and that’s great to hear! Awesome! Take care!
    Love & peace,
  4. gretsch-to-go

    gretsch-to-go Gretschie

    Oct 2, 2019
    Palm Coast, FL
    Exactly, there is a reason the hospital would keep & observe a patient. A stroke & heart attack has initial damages, a lot of collateral damage is the chemicals, enzyme levels in the blood days after the event. A lot to read and try to understand, but enzymes & proteins are cardiac biochemical damage markers, that damage is irreversible, just like lung damage & brain cells don't regenerate. A lot of this is based upon other side of the last century stuff for modern medicine. It may be 2021, but the science behind it might be from a more barbaric era of USA healthcare. This pandemic thing, coupled with healthcare industry experience with claims analysis with SQL Server databases, becoming a caregiver. The science & technology is what it is today. No cures for human mortality.
  5. Best wishes.
    Good that she recovered so well. Sounds perhaps like a transient (?)

    Sound advice on “err on the side of caution.”

    Fwiw: Area of brain determines how it manifests.
    I know people who were perfectly lucid & well-spoken during a stroke.

    The standard for administering thrombolytics varies.
    By study roughly a decade ago indicates: 5 hrs s/b the std. But I believe it is not. Some still hold to 3 hrs. I know a clinic which did not give them because they could not ascertain when the onset occurred & the result was not good. Had they thoroughly interviewed the person who discovered the victim, it would have been just inside their 3 hr window.

    A little more: I know someone who hesitated because the onset was scotoma: the visual abberation some people experience with migraines. (Migraine side effects may disguise a more serious event). People need to read the owner’s manual that came with their body.

    Not a doc, but I seen the owner’s manual.
    Last edited: Jul 23, 2021
  6. stevo

    stevo Friend of Fred

    May 1, 2012
    Ha ha - I'm not a doc, I've just got a best mate who is one.

    Definitely not a TIA, the symptoms persisted for too long and it only began to subside after they administered the tPA. They told us the window for the intervention is 5 hours but I don't know if that means any and all intervention or just the tPA. The speed of symptom resolution kind of surprised them but maybe most people don't go for treatment quickly enough?

    As with so many of these, they're not entirely sure of the mechanism but are going to put an afib detector in her chest to help decide treatments. They're 60% thinking stroke from blood clot, 39% vaso constrictive and 1% complex migraine. In fact, there were visual disturbances at the onset and she thought it was one of her migraines. But when the speech stuff started, she got worried.
  7. Uncle Daddy

    Uncle Daddy Friend of Fred

    Jan 19, 2012
    Maldon UK
    When I was training on a ward in China, I learned that acupuncture is the primary rehab process used there. On conferring with my professor, he explained what they do, and why. We watched this documentary during our training- I'd love to see this become more mainstream.

  8. GretschPraise

    GretschPraise Gretschie

    Jun 26, 2017
    Tampa Bay
    So glad she came through it well, could have been much worse.

    I'm genetically predisposed to heart disease (thanks dad!) so I spend 40-60 minutes a day on the bike
  9. doc538

    doc538 Electromatic

    Sep 20, 2017
    A friend of mine was over my house and seemed really out of it, I wanted to call 911 or take him to the hosp, thought he might be having a heart problem. He refused and went home, next day his wife woke to find him non-responsive and called 911, he had a stroke. A year later, he could say one word and repeated it often to his wife, who was always nagging him to do his rehab. The word "*itch". Thankfully, your wife is OK, he never fully recovered.
  10. stevo

    stevo Friend of Fred

    May 1, 2012

    Oi - keep those LDL numbers down.
  11. stevo

    stevo Friend of Fred

    May 1, 2012
    Oh my gosh, that must be traumatic for them. Sorry to hear it and it just reinforces the idea of getting fast treatment.
    doc538 likes this.
  12. Rayzor

    Rayzor Electromatic

    Feb 28, 2016
    AR, USA
    Praying for you and your family
    stevo likes this.
  13. Jerzey Bob

    Jerzey Bob Synchromatic

    Apr 3, 2021
    North Jersey
    best wishes
    stevo likes this.
  14. Back in Black

    Back in Black Country Gent

    Jun 22, 2020
    Ontario Canada
    Hey stevo,

    God's blessings to both of you.

    The stroke monster visited us, yesterday morning a 10 AM

    I was told by the Chief Neuro today, that Janet will be hospitalized for at least two months. I won't have my Dolly back until November.

    At some point in the recovery, she will be transferred to a stroke recovery center for physio, in hopes of getting her paralyzed left side mobile again. We're moving on the 17th of August, she won't see our new digs until almost Christmas.


  15. stevo

    stevo Friend of Fred

    May 1, 2012
    So sorry to hear it mate. Prayers in your direction.
  16. Cass

    Cass Electromatic

    May 24, 2020
    Good health message. I have spent a good part of my professional life caring for people after a stroke, and it's not pleasant. Rapidly seeking intervention at the time when a stroke happens can significantly reduce on-going problems. Best wishes to your wife, and congratulations on your prompt action. For the people reading, the ideal approach is to do what you can to prevent a stroke before it happens.
    stevo likes this.
  17. ruger9

    ruger9 Country Gent

    Nov 1, 2008
    God Bless you guys, BIB.
    stevo likes this.
  18. stevo

    stevo Friend of Fred

    May 1, 2012
    Great link - thanks for sharing.
  19. Glad she is doing well.

    If you do have a top doc as best friend, he ought be able to explain it.
    I suspect a “transient” is mostly just a stroke that rights itself with minimal damage.

    No one has ever produced an explanation for the hard cut off time (that I’ve heard) on thrombos. Its not like Cinderella’s carriage turns into a pumpkin in 5.

    As I said, it used to be 3 hrs not so long ago.

    I don’t follow your percentages. That isn’t a breakdown, is it?
    How does one assign “39% vaso-constriction” if it was a full bllown stroke, yet “1% migraine?”
    Last edited: Jul 30, 2021
    stevo likes this.
  20. ZackyDog

    ZackyDog Friend of Fred

    Feb 6, 2015
    In the USA
    Sorry for the scare, but glad she is recovering.
    stevo likes this.
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